Hey - Just wanted to check back in and let everyone know that this cycle went really well, and for some reason, Hans' ANC was still up at 1500 when we got it checked on Friday. Hans' Sodium and Potassium levels are great, but we are supplementing Potassium three times a day! Hans only complained about light sensitivity and eye pain a few times on this round 5. Not bad, we needed an easy round after a sort of rough round 4.
Please, say a little pray for Hans to have clear or improved scans on Wednesday. On this med Hans only receives the MIBG scan. We are so hopping for good news. The only thing that makes me a little nervous is that both cycle 4 and 5 were delayed by one week. Round four was delayed by our (stupid) missed flight and the blizzard, and round 5 was delayed b/c he didn't make counts. I don't like treatment to get delayed. We usually will do everything we possibly can to keep him on track - even in a hurricane! So - I guess that's my biggest fear going into these scans. But, he looks pretty great.
Hans is funny - he wants to go get a gold chain! I am going to try to take him up to the Catholic book shop today and look for a St. Christopher medallion. St. Christopher is his patron saint (for those of you who aren't Catholic, when you baptize a Catholic baby you pick a Saint as your child's special patron.) St. Christopher is the Patron Saint of travelers! Who would ever have thought our little baby would be needing this patronage to see him safely to and from Philadelphia on such a regular basis???
Thanks to Genna and fam and for taking care of Elle, thanks to Debbie and Shawn and Ellen and Dean for carting her around! It takes that village to keep up with Elle! Thanks to our neighbors the ansley's for keeping an eye on our house and pets!
Will post from Philly.
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.