Just to let you know - we didn't wind up getting a spot on the MIBG schedule at TCH this week. Bummer, but I sort of had a feeling that wasn't going to happen. We have appointments for next week up at CHOP - so we'll see how it goes. I am hearing reports of more snow, so who knows...
Kevin's bag made its way back home:) We were actually surprised by how quickly it got back here.
I took Hans in for counts yesterday. He is doing great counts-wise - he had a strong ANC of not quite 3,000. A HBG of 12.5 and plts of 326. I guess that's the other 'up' side of delayed treatment - a kid who gets to feeling pretty great with an extra week off chemo. His chems have been fine, but we've been giving him two Potassium supplements a day since we started to notice it drop on Millennium. He actually doesn't like taking the huge pills, but he does okay.
Hans is really making progress with Ms. Kathy. He is starting to get some sight words down, so now he's starting to read sentences. It's pretty exciting! They take little breaks and he likes to beat her at games. He has been kicking her butt at 'Art Ditto' (a famous artwork memory game fr cousin Erin) and every time he makes a match he practically does a touchdown dance.
It's still cold here - but I shouldn't complain b/c we're definitely not buried under 30 inches of snow. Elle is on a Girl Scouts adventure tonight to an Observatory at State Park.
Oh, PL - Hans and I actually end up doing a lot of the paper airplane-a-day pages together. It's sort of hard, but fun. Thanks, that was a neat find.
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.