Everything looked good with counts yesterday. Sorry to be such a slacker - just now posting. ANC up to 1500, HGB up to 10.7, and platelets over 200. This is all good -it is nice to see his numbers recover quickly. Our NB kiddos can eventually get to a point where it takes the counts longer and longer to recover. This complicates what treatments they can get, and sometimes they can't get it on schedule. So, it's nice to see Hans' counts recovering. His Potassium was normal again. It was probably a little extra low because he needed stress dose steroids with his fever last week.
We got to hang out with our friends Alex and Athena on Friday. They had finished their appt earlier in the day - but elected to hang out with Hans through his appointment. The kids all had fun together and played a few games of Air Hockey.
I dropped Hans off at Marathon after clinic. He was pretty proud to ride home with Daddy and they stopped off for some toys at Toys R Us; spent some Christmas gift cards. Just what we need around here - more toys, ha ha. But, it's so fun for Hans to shop. He received a Bionicle from our friend Breanna, the Child Life Specialist at clinic. Now he's onto a new obsession! He's so cute to see putting these things together - such a little engineer. Oh, I also brought a new home phone Friday night because we were needing one. Hans couldn't wait to get that thing out of the box and he set it up single handedly. It cracked us up that couldn't wait to do the job.
Hans is complaining just a little bit of light sensitivity and headaches so we are keeping our eye on that. We are just doing stuff around here since we haven't been home on a weekend in a while. It seems that there is always a lot to do. We are trying to rake that yard! It might sound pretty boring - but it's more like a luxury after a weekend inpatient. It's gonna feel good to get that done.
Elle had a sleepover Thursday night, and volleyball game yesterday and I was glad to get to see it. She also had a fun sleepover and not too much of a homework load this weekend. All good.
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.