About Me

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Bakersfield, CA, United States
Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.

Sunday, January 10, 2010

can u guess where we r???



From this pic, I bet you can tell we bought our selves two or three nights on the 9th floor, due to fever and a ANC that went from 1500 Tuesday, to 500 Friday, to 300 Sat, and back up to 660 today. HGB holding its own at 10.2/8.9/8.8 the last few days. I'm dusting off my memory, but I think it can drop a little while the kiddo is receiving fluids, no? Hans was looking pretty puny and not eating on Friday and with a temp of 100.6, I brought him into triage at noon. He started to perk up and eat again by 5pm, after a few hours on fluids. He has complained of headaches a few times. But, as you can see from this picture, he is really looking pretty well. This is how is hair looks this days. It is less full in back, but I'm glad he can't see that part!

Ever the optimists, Kevin and I are attributing these symptoms to the new med, Millennium, doing its job of breaking down that little bit of tumor! Go Millennium Go!

Will post more later. Elle and I are about to go back down to the hospital, and relieve Kevin. Elle can't officially enter the floor yet, because they have strict sibling age restrictions during the H1N1 scare, so she has to wait in the lobby while we switch out. Kevin and Hans had an electronica festival last night. Kevin brought down the Wii and a mini TV so that they could watch NFL playoffs while solving Indiana Jones 2 on the Wii. The guys know how to have fun together. I have no idea when they will release us??? Today??? Tomorrow???? Soon ish??? No fever since we showed up at clinic Friday and started getting IV anti-b's and fluids. No known cause of infection yet, but cultures are still growing.

Thank you Athena and Charon for running a lanyard workshop for the NCL girls Friday night. Ms. Nusbaum - I'm sorry I missed my opportunity to meet baby Mia! :(

With a stroke of luck, Elle and I were able to depart from TCH in enough time to meet the Girl Scouts for a tour of the KUHF (local NPR) and local PBS stations at the University of Houston yesterday. That was nice. Thanks to our troop for accommodating us!

Will post more, and maybe even upload pics of our trip from the hospital.

Lara

5 comments:

Blair said...

Praying you're outta there soon!

Bret S said...

'Go Millennium Go!'
I second that!!
You are all in our thoughts!

Mulholland/Basom family

Anonymous said...

Uggh! Sorry you landed on the 9th floor for the weekend. Hope you're sprung soon--you're right, Hans is looking great for being in-patient! I do have to say though, that if that's thinning hair for him then I need your hair genetics! Let me know if you need anything while you're up there and i'll be happy to run something to you! Go Millennium!

Sarah

Anonymous said...

Wishing you home soon...Hans' smile is reassuring!

Love and hugs,
Aunt Susy

Anonymous said...

Hope you are out soon. Indi on the Wii and Football playoffs sound exactly what our boys are doing these days. Tell Hans to feel free to email Sam if he needs any tricks on getting to the next levels. Go Millennium!

Margot