Just a quick update -
We are at the Ronald McDonald House this afternoon, having some down time before we head out for the Poconos tomorrow.
Dr. Maris reported that Hans' MIBG scan was Slightly Improved. There is just the one spot on the skull. It is a little bit more faint on the scan and a little smaller. We didn't really ask for percentages of how much fainter, how much smaller. The phrase of the day: "That's what we wanted, we're really happy with you, Hans." That's the scoop. So far, all of this time, Hans has been a Responder. He has pretty much always responded to therapy. We are really grateful for that. What more can we ask for? Other than, of course, complete and total healing for Hans and all of the other cancer kiddos...
Thanks for your ongoing thoughts and prayers for our boy. I'm visualizing that this spot is gone soon! Three rounds???
Next: we start Round 2 of MLN8237 today. We'll check labs weekly and we'll do a third round of the stuff and come back up for scans the week of Feb 8th. I'll try to move the bake sale up a week so I can actually bake for and work this next sale.
Happy New Year! Every day is an adventure. Every day is a gift.
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.