Wanted to let everyone know that Hans was able to go ahead with the Bone Marrow procedure today. Yuck. Bone Marrow days are never fun days, but, we got one more thing checked off the list. I'm glad he was able to do it and hopefully it is going to come back Negative. Dr. Maris actually suggested that he thought it would. I have been having this fantasy that the "spot" on his head was actually shampoo or conditioner. (One time we got a false positive the day of the test because he hadn't washed soap off his hands well enough. The image came back fine as soon as he went back and washed and rinsed his hands well.) But that's all in my head, I'm pretty sure. Dr. Maris seemed pretty confident that it lit up with tumor activity. I guess we'll know more Wednesday. Tomorrow's CT results along with BMA results will be discussed on Wednesday morning. Then, we might start a new study Thursday and Friday. I should know then when I can book our return trip (Friday or Saturday). It has only been a week, but we are ready to go HOME. I guess we're on the down hill slide, hu?
PS I didn't think to bring my camera cord, but you can copy/paste this link to check out our PRMH. It's pretty cool. www.philarmh.org
Also - you can copy/paste this link to read a little bit more about Dr. Maris. He's a true Physician/Scientist http://stokes.chop.edu/programs/maris/
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.