Hi From Philly -
So far we've had a totally relaxing and non-stressful trip. It was off to a good start, we had our first Corporate Angel Network Flight. I had thought we didn't qualify for those flights or something, but I went ahead and registered with them, and got a flight on Monday. It was a pretty cool experience to fly on a little 8 seater. It was cute - the copilot was also our flight attendant. Hans has become a pretty pro traveler and he kinda acted like we flew like that all the time. It was sweet of the company to sponsor us a car from an airport near NY to Philly. It was definitely a relaxing, non-stressful way to fly! No airport or security, no lines, and we didn't touch our bags from the time we put them in our car 'til we got to the hotel lobby. Fun, but I best not get used to it! It's just cool that someone thought of Corporate Angel Network. They seemed genuinely pleased to be helping out.
Things are going well so far. Hans had his MIBG injection, labs and an Echo today. Tomorrow we have a BIG day of MRI, MIBG and an office visit. Hans came down with a cold over the weekend, so he has got a rough cough and a little bit of drainage. Kevin and I have been worried that they wouldn't want to sedate him with all of this going on, but we stopped by sedation and they thought he'd be okay. Hooray.
Tonight we'll hit Hans' favorite University City restaurant for chips and salsa and "cow steak" for Hans.
Thank you for your thoughts and prayers for these scan results and for our sweet boy.
Every day is an Adventure. Every day is a gift.
Lara
About Me
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.
4 comments:
You are totally the people CAN was designed for! I know the program well and think it's pretty well run. I'm so glad you lucked out and got a flight, it really has to be so much easier for you (but no, don't get used to it, or you'll never want to fly commercial again. :) ).
Have fun in Phila. I'm with you in spirit taking down the chips and salsa.
xx
erin
Hey Lara! Glad you made it safely--seems like corporate jets are the way to go! We've got you guys all wrapped up in our prayers tonight--hope that Hans gets GREAT results tomorrow and makes it thru sedation with no problems! Looking forward to your next post with clear scan news...
love,
Sarah Thweatt
Hey guys just a quick note to let yall know that we are praying for awesome results let us know how it goes!!!!!!!
WOW...CAN is a marvelous!!!!! WHOO HOO! It's a gift that is meant to be treasured!
Chips AND "beast steak"....all in one sitting?!!!
Aunt Susy and Friends will be over your shoulders, peeking in on the festive feast!
Love and hugs,
ALL of US!!
Post a Comment