Well, we arrived at TCH with an apt for a biopsy and some lingering questions. The outcome was an impromptu team meeting and the current decision to postpone the Open Bone Biopsy. I know - that is a surprise! We had hoped to get some questions illuminated, and I guess our questions didn't necessarily "have" answers... We were also hoping for a greater confidence that the surgeon could go in and get what he needed while doing minimal damage. I guess we were under the impression that they only needed a very small sample, but the surgeon indicated needing a much larger (dime sized!) core sample...
Our next step is to see whether we are cleared to start back up with Round 12 of ABT 751 and go from there (like do a wait/watch with another round of MRI and Bone Scans in a little while...) Waiting for a response. In the mean time, Hans' arm has continued to show marked improvement. However, we have been instructed to keep Hans home from school, and to ensure that he does not injure it. That is, for the time being. We are trying to push through the process of getting Hans set up with Home bound instruction. But, everything is such a process... We are, I think, pretty bummed and confused. We feel no closer to the truth or an action plan to make Hans better. No closer to knowing if it is NB, some other thing, or what! We just in our hearts couldn't put him through a procedure that could hurt him. The docs left it up to us, so we made the best decision we could at the time.
About Me
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.
4 comments:
Life IS a puzzle...I do know you make your choices for Hans based upon all the information and love.
Seemingly, there are no firm answers at this point. Hans does seem to be better!
Faith and love will prevail.
Love to ALL...
Hugs,
Aunt Susy
Hey just checking on yall. I know that it was a hard to make the choice but you made the best one for Hans and yall you are great parents and woudl only do what you felt right. Sending prayer Lara it was great to see you on Sun and getting to visit. Talkto you soon thanks for keeping us posted
what a roller coaster you've traveled recently! You do the best you can with the info you have - glad to hear that Hans is more comfortable with the arm.
Hugs and prayers,
Post a Comment