So - we had a pretty rough appt with Dr. Russell today. At the time we saw her, she had contacted the Pathologist at the lab. At that point he had suspected NB at about a 90% confidence. He just hadn't confirmed it with a stain. We were to wait until 5pm for confirmation. I got off the phone with Dr. Russell a little while ago. She had received an email from the pathologist, saying that he was unable to confirm NB with a certain stain, but that he still suspected it, and would try again in the morning. The thing is - they are pretty sure that it is a cancer. The crazy thing it might be possible that Hans is suffering from something like Osteo Sarcoma or AML. If that is the case, Dr. Russell assured us we would treat with the intent to cure. Oh my goodness. What a rollercoaster. Don't even know what to pray for. That's it's all wrong - that somehow the "infiltrant" detected in Hans' Bone Marrow cannot, must not be a cancer.
Thank you for your thoughts and prayers now. We are waiting. I don't know if we will be informed of anything tomorrow. It's not usually much of a communication day in clinic. We are trying to get Hans scheduled for a CT and a bone scan and a Bone Marrow Biopsy. The thinking is, if this is indeed disease (which they think it is now), and it is no longer MIBG avid, we don't know how many areas are involved.
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.