We are not getting off this rollercoaster yet. As soon as I post of good news/no problems, then things take a turn. Sunday we had a great day. Hans was low energy, but he helped me around the house and yard and we did some shopping while Kevin and Elle were cheering in Orange! (GO Dynamo.) Then, he was good all night until about 9:30 pm when he started to complain about arm pain. He is usually so stoic/tough/not a complainer, that we clearly knew something was wrong for Hans to have pain that made him actually cry. And, he is the one who finally made the decision to go in to the hospital. This is pretty unusual for him.
We got Elle to Michelle, and then hit the ER at midnight. They accessed Hans, gave him IV morphine, and the second dose actually got the pain finally under control. We did a second xray which looked unchanged from Thursday xray. We are now waiting in a relatively cushy/comfy 9th floor room for an MRI. I don't know if it'll be today or tomorrow, we haven't even seen the docs round on us yet. But, Hans' pain is under control and he is sitting up playing video games with his daddy.
Dodie, our Sparrow Clubs Rep, asked me to spread some news to you... If you are local and want to do something to help, you can go out and support the Sparrow Clubs Dinner for Hans tomorrow night Oct 20th from 4-11pm at Chili's. Branch Crossing 9th Grade Campus has adopted Hans as their sparrow child. The funds help to pay for Hans' treatments and our quarterly travels to CHOP. They are a lifesaver. So, if you are hungry tomorrow, and need to eat - go to CHILI"S in Sterling Ridge (Woodlands Pkwy and Kuykendahl) 10% of your order (dine in or take out) goes to Sparrows for Hans. Just ask for a flyer at the front. I tried to attach here - but it didn't work.
Thank you! I'll Keep you posted on what's happening here. I think we are looking at a couple of possibilities here: Recurrence? Bone Infection? Neuropathy? Some thing else? It's hard not to cringe when we see him hold that arm in the exact spot he relapsed the first time around.
Thanks for the love. Thanks for the thoughts and prayers. Thanks to Michelle for being on Elle duty this week. Thanks to Alana for helping out with Honey. Don't know how much longer we'll be here, but hopefully not tooo much longer!
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.