Hans and Kevin not posing for me tonight!
Hans tonight watching his movie...
Discoloration and swelling at the sight of pain in upper right arm. While there are still a couple of possibilities, one possibility is a second recurrence of NB. Next, we will do an MIBG scan. if we have any luck, they will squeeze us in tomorrow. If not, we will wait have to wait until next week. Staying put at the hospital for now to control pain. Hans' pain seems like it is beginning to limit his range of motion - he's eating and drinking primarily with his left hand now.
If MIBG is positive, it means NB is back and we will treat as quickly and intelligently as possible, in consultation with CHOP. If MIBG is negative, then we will do a biopsy of the bone and go from there.
That's the scoop. We are watching the new Transformers movie, conveniently, it came out today on DVD.
Lara
8 comments:
Keep us posted... I know I am not the only one hitting refresh on this site! In the meantime I am glad that you are well-situated to keep the pain under control, and that you have good DVD diversion. :)
xx
cousin Erin in Chicago
Hi Lara,
Just know that I am thinking of you all and praying it's not new tumor. I don't know what else to say except try to breathe! If I wasn't headed out of town tomorrow I would come up for a visit. I'm a phone call away if you need to talk.
Love, Charon
I was up on 9 restocking and delivering cookies Monday night - wish I had seen your post earlier and had stopped by. Well maybe you got one of my cookies from the kitchen.....Take care, we are rooting for you guys.
Praying it is something "easy" to treat, and not new tumor. I wish I would have had time to stop and talk on Monday, but you know how it is trying to keep a little one contained in a very small space. Sending all my good and happy thoughts your way!!
Kari Mika
I am thinking so much about you guys......Praying for Hans to get into nuc.med.asap!
Wishing, hoping and praying for you all.
With Love,
Roxie
May this day bring good news!
The photos are cheery!
Holding you near and dear with HUGE love and hugs!
Aunt Susy
We are praying that the MIBG can be done today so that what every the results you will know what direction you will be headed We are praying praying that it comes back negative ans that it is a bone infection. I wish that we could come visit I know that Colby and Riley would watch Transformers with him they loved it!!!! Prayers
Tracy
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