About Me

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Bakersfield, CA, United States
Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.

Monday, October 05, 2009

More Excitement

But... not so much... Hans was looking great, and then a little puny at times over the weekend. I swear, as Pedi-cancer parents, all we have to work with are our instincts. As Kevin and I were hanging out with Hans over the weekend, he just seemed a little off... but not necessarily off enough to initiate a call to the Hemonc on call and thus a trip to the ER. So, we decided we'd hold him out of school, and call clinic at 8am to request a counts recheck - we did, and the result wasn't sooo hot. Hans' Potassium came back low again today at 2.8. Yikes! Poor little dude. So, we gave him an immediate supplement, and we have a plan: Keep him stress dosed on steroids for now for whatever it is he is fighting off, and dose him with Potassium supplements two times a day, keep him out from school again
tomorrow:( and recheck his Potassium again on Thursday. I think we can handle that. The theory is that in a few days, we'll be able to cut back on the steroids and the Potassium will level off (there is an interrelationship there). So we'll see how that goes. Meanwhile, I take it as a very good sign that Hans is asking about his pals Owen and Federico at Kindergarten. We hope Hans gets to check in with them on Wednesday. I hate that he has had to miss so much!

In other news, we had an okay soccer game. Would you believe Elle is now the tallest girl on her team? I can't believe that - I'm the 5'2" lady that always held the class sign on picture day. So, I think it's her height (about 5'0") and her courage that land her in goal. She played goalie for the first half of the game. I was beaming with Mama Pride as she deflected at least 20 shots and only let 2 through. We lost 3-0.

And then, I had a wonderful night on Saturday... Charon (Carlie's Mom) and her friend Lisa hosted a beautiful Lanyard Workshop. Vickie B. (Erin's Mom) joined us from Bryan and we provided enough beads and starts for 45 plus ladies to come and bead for a cause. It was awesome. Charon and Lisa put up a to-die-for spread, and the ladies beaded some beautiful stuff. Thanks to my pals Dana and Vickie and Laurie who were able to come out. The funny thing was that I left with not a single lanyard. Everyone bought them up for themselves, a friend or a teacher gift. I have to get busy now and stock back up. Thanks too to Debbie and KK and Paige - all of your lanyards are GONE. KK - your fun/funky fish lanyard brought quite a pretty penny in CNCF donations. Thanks everyone.

Everday is an Adventure. Everyday is a Gift!



Anonymous said...

Just tell Hans that his little pals are anxious for him to come back to school. We'll keep our fingers crossed for Wednesday!

I'm working on getting another bead nite scheduled for Ellensburg. We should be able to help build up your supply for the next bake sale.

Good job Elle! I definitely think you exhibit a lot of determination and courage in everything you do. We're very proud of you!

Hugs to you all,
Love, G.Kathy and G.Dale XOXO

Anonymous said...

Hope Hans is better today :) so glad that the workshop went so well that is wonderful!!! I think that I need to have one soon it sound like tons of fun. Talk to ya soon


Anonymous said...

I'm so proud of you for setting up that beading night! I hope to attend one the next time I'm in TX!

I'm keeping Hans and all of you in my thoughts and prayers.

Glad that Elle is such a strong and successful student athlete!