We got into the MIBG scan this week. Injection will be today and scan tomorrow. Some poor kid out there got his/her scanned bumped for us. I'm sorry for the drama that must have brought to their family; may that child enjoy beautiful clear scans next week!
The MIBG may confirm what we already suspect. Then we can have at it! We are keeping Dr. Maris' team at CHOP in the loop, so we want to make sure they are on board every step of the way.
Hans' pain is now pretty consistent. The docs are looking to find an effective oral pain med so that we can take care of him at home. It was useful to be here up until now, however, I believe it expedited us getting into the MRI and the MIBG in such a timely manner. I just don't like it when we use up all of our luck on Hospital Efficiency! I'd prefer we saved some luck for Good Results.
Hangin' in there...
Lara
About Me
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.
4 comments:
My thoughts and prayers continue for you guys! Lisa
SO glad you're getting MIBG done tomorrow. I hope they can get Hans' pain under control with meds you can take home with you tonight--I know you'd rather be there with the whole family together! You're in our constant thoughts and prayers and we're still keeping our fingers crossed that you'll get some good news after the scan. You guys are a great family and Hans is one amazing kid! If you need anything we're here.
love, the Thweatts
Thinking of you all this week. Hope the pain stays under control and you can knock it back as soon as possible.
Margot
Onward and forward towards solutions!
Love,
Aunt Susy
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