It's late and I'm a little pooped - I'll give you the quick scoop now.
Good news: Scans Still Clean! This was by no means a given. Hans and a handful of other kids in a second remission for Stage IV relapsed NB are on this ABT751 on a compassionate/experimental basis. There just isn't enough data to predict success with any certainty. Especially with a disease where, when it comes back, you can scarcely find an oncologist who can rub two digits together for a survival statistic. But, we are sinking all of our eggs in this basket and taking it as far as we can. The important thing to me is that our gut feeling is telling us to stay put, rather than calling us in another direction.
Not-so-hot-news: Echo cardiogram wasn't great. (Heart problems are an uncommon side effect of being on the ABT751, in addition to some of the other treatments Hans has powered through...) We are going to follow up with another ECHO in a week or two here at TCH. We are holding the Round 7 of ABT 751 that should have started Friday until after the second Echo. Kevin and I are hoping it was a bad test. It's a possibility. But I can be a little on the wildly optimistic side! Either way, it wouldn't be a deal breaker, we just might have to make some concessions to stay on the ABT...
I'll explain a little more in the coming days and fill you in a little on our trip, (we thought Central PA was very pretty!) but I wanted to put out the headlines before my head hits the pillow.
Thanks for all of the prayers you have said for Hans and all the other kids undergoing NB and other treatments. It really is a crazy life!
On another note...goodbye to Kevin's Grandpa Bud. He passed away on Father's Day morning. He was a really good man who lived a good life and paved the way for all of us to have so much in our lives. You will be missed, Grandpa. It was very special that Hurricane Ike brought us to your doorstep in Arizona and we got a bonus visit with you! We have also recently lost another of Kevin's grandpa's - Grandpa Don. He was a really cool guy and a special Vet who served the people and animals of Kittitas County, WA for 40 plus years. One family is lucky to have two such special gramps'.
Lara
About Me
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.
5 comments:
Good morning, dear ones!
WHOO HOO for clear scans!!! We will pray that the next ECHO cardiogram will reveal more positive results.
I just know Grandpa Bud and Grandpa Don are holding Hans' well-being in their great hearts with love and smiles!
Love and hugs,
Aunt Susy
Glad you all are back! Thank GOD for clean scans!! Keep us posted on the echo.
Yea for the scans, boo for the Echo.
Sorry for the loss of another g'pa.
Hugs,
Great news on the scans! Hopefully, you'll get better news on the next cardiogram.
You two (four) are the most awesome friends a girl could have. Thanks for making this Fridays Lanyard-rama fly! Hey, Hansy, good work on making your mom stay much longer than she planned!
VB
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