About Me

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Bakersfield, CA, United States
Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.

Thursday, November 20, 2008

Normal?!? Week

Hans riding sissy to school in the bike trailer yesterday morning. He has panda bear with him to keep him safe from trail monsters, he said.


Not much to report here - we are enjoy a gloriously normal week. We have clocked less that 59 minutes in a Children's Hospital this week! How great is that? I know it was less than an hour because I had the rare priveldge of paying just $4 to park at TCH when we went in for labs on Tuesday - the lowest ticket issued is for a stay of less than one hour. I was almost glad to pay it - a minor success...

We just had to go down to have a urine sample collected - for (I think) the first time CHOP ordered Hans' VMA/HVA (?) levels. Some hospitals watch these levels as tumor markers, but since TCH doesn't regularly check them, I am assuming they must not be extremely reliable???

We have been getting great use out of Hans' bike trailer and we've been trying to squeeze in some playdates and get-togethers before heading out. I've been trying to line everything up for while we're gone. As usual, I have a few thank you's:
Man's Best Friend gave us a special 'clinical trial' rate for Honey. I'm so touched that they did this for us!!! Thanks to everyone who donated Contitental miles - we had enough to purchase the tickets for all four of us to travel up there for the trial. Thanks to Ginger, Michelle and Laurie who are helping me out with playdates for Elle after she gets back and with pets and Thanks to Carmen and all the ladies helping me out with the bake sale in my complete absence that day! Thanks to Sparrow Clubs for inviting us out last night - it was fun to get to know some of the kids: Sparrow clubs has been cooking up some fundraisers - anybody hungry??? Check out these fundraiser nights:
Tuesday Nov 25th Red Robin - on I 45
Chili's Dec 11th - (I have to confirm if this is the one in Sterling Ridge or off Lake Woodlands).
And, Chic Fil A (Alden Bridge) - Dec 17th.
For these events, sparrow clubs gets a portion of the proceeds if you bring in a flyer, so go to: http://twhs9.conroeisd.net/Teachers/dniemeyer/Sparrow%20Club
to get the flyer before the event, the one for Red Robin is now posted. Wish we could join you. Thanks and Bon Appetit!

Lara

1 comment:

Anonymous said...

Yes, the Chili's night is at the Chili's in Sterling Ridge right off Woodland's Parkway--thanks for advertising these events! We are all praying for your safe travel and successful treatment.

Dodie