Hi -
Just a quick post to let everyone know what we've decided to do - we have started another round of Irino/Temodor. We are still waiting for the docs to get on the same page regarding Hans' scans. I guess they must really be on the ambiguous side. Dr. Russell sent them out to Michigan for a (3rd?) opinion. They do the MIBG up there too. So - at least he should be well considered.
The chemo is going fine. It took us quite a while to get started yesterday, but the rest of the week should go fairly quickly. I missed Erin and Patrick up at clinic yesterday since we had to start so late, but I think they're both doing okay. (More prayers for shrinkage for both, on their new therapies!) I did get to see our new friend, baby Michael, and I hope the poor little dude finally got a room!
Got some fundraiser things cooking:
Garage Sale in Spring: 4726 Rivertree Lane - Sat Nov 1st... If you want to come shop, or have things for sale. Sorry not to give you much notice, but I've been meaning to post this for a while. You could drop your things off with me. We are also going to have a second sale in College Station on the 8th...
Also - The Memorial Bake Sale has been rescheduled for Dec. 5th.
We have even booked the bridge for the Valentines Day Bake Sale - Feb 13th, 2009! If you are considering having a Valentines Day Bake Sale in your neck of the woods, you may be able to go ahead and reserve the space now. I know at TCH they won't let you reserve the spot more than 4 months out... Hint hint - these go REALLY WELL at children's hospitals, probably any hospitals. I have a tip sheet on starting a bake sale, and one for giving your volunteer bakers - you can email me at kevinandlara@hotmail.com and I'll send them to you!
I'm also working on my annual little Lunch for Life appeal post/email, but Kevin has sent me back for some fact-checking! So - I'll have it up in a few days. You know that we sure do appreciate your support.
Lara
PS - We had our insurance adjuster out yesterday! He turned out to be quite a nice and reasonable guy. We're still waiting on his final quote - but I think I might be able to live with it.
About Me
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.
3 comments:
If you ever need any of the Sparrow Club kids to help with fundraisers you are doing, just let us know. They can count it as community service and right now they have no community service scheduled for November or December.
Dodie
PS...I THINK they can count it as community service, but even if they CAN'T count it, they'd be more than happy to help!
dodie
Probably just as well we didn't see you yesterday. Between back-to-back trips to Houston (for Erin) and the steroid dosing that pemetrexed required, Erin was a bit testy and less pleasant than usual. We did have the lanyards with us, but presumably we will see you again before too long. Good luck with this week. Yesterday went pretty smoothly for us, except the B-12 shot, which really hurt. It was probably the turning point of the morning for Erin.
VB
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