About Me

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Bakersfield, CA, United States
Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.

Wednesday, July 02, 2008

Topless Cyclone, Round 3


Hans, riding a very cool rocking horse in clinic yesterday

Elle and Hayley, doing art in clinic yesterday
Hello again,
I have been hesitant to post, just because I liked the rainbow picture. But, Ah, well, I feel I should clue you in.
Hans managed to keep the fever away and make it through the whole weekend at home okay! He has had a cough that he'll only get in rough bouts. He was able to sit through Elle's GS skit presentation (cute), and even watch his first/her last volleyball game. It was sweet. Elle commented that for her first v-ball game, Hans and I were off at the TCH ER getting the fateful Xray. He either has been inpatient, or hasn't been up for a game yet. But it was sweet to see him cheering his sissy on.
We tried to make it to our friend Kelly's special baptism/confirmation party Saturday night. The cough appeared just in time for the party - so we just made a very brief appearance. But it was special since the Father performed a special blessing for Hans. All the people in the room stood up. Many of the women there have been praying for Hans, and reading this blog - so it was neat to meet some of them, if very quickly. I am sure Kelly received a similar blessing, but we weren't able to stay for it...
So - we are on day three of Topo/Cytox. I think it's going okay. This morning Hans was teasing us with a lowgrade fever of 99.7. So, my hope remains that Hans will just be able to pull through this round on an outpatient basis. It's a little exhausting coming back and forth daily, but it is doable. Hans got his port accessed on Monday - so he has only had to have one "poke" all week. He will have it de-accessed on Thursday. He's counting down the days. He comes in, gets prehydration for one hour, the two chemos also run over one hour, and then the post hydration runs over 2 hours. We are then supposed to take him home and get him to drink 30 oz of fluids to flush out the chemo! Wish us luck! We did better with that Monday than Tuesday. But, we've been making the most out of the week. We kind of had a bash up here yesterday - Ryan's dad, CD, arranged a "party" with us and Chloe P.'s family - we all feasted on Pappasitos! Elle had fun doing art projects with Chloe and Hayley, Ryan's sis, and today we had a visit from Snickers the Pony. Hans loved the fact that he was in a diaper!
Thanks - for meals from Denise C., Laura W. Yum! It really has been incredible - It's pretty exhausting to come down here so frequently. It keeps us from relying too much on take out! And - thanks to Carmen and Kae's family for keeping Elle from making the trip every time we do - and thanks, also, to Alana and Carmen and Michelle for helping look out for Honey while we're down here long days...
Okay I think that's it for now. Just hoping to keep up the plan as expected. No Zometa this time, we'll wait for Round 4 to do another Zometa infusion...

Lara

3 comments:

Anonymous said...

Hi!

Thank you for the cheery photos and news of a party!

Your extended family is dear, especially with your present demanding schedule and pressures.

WHOO HOO for ponies and art...they are magical!

Love and hugs for all,
Aunt Susy

Anonymous said...

My love to you all...

Keep drinking those fluids Hansie, they WILL help you get better.

Lara: Your stamina and strength are an inspiration! You are a SUPER MOM!

Love,

Roxie

Anonymous said...

Hi! After I read the blog I was exhausted!!! You are a powerhouse Lara, your head must be spinning. I appreciate you taking the time to blog. Hans- drink up buddy, get those ickies out!!! Hi to Kevin & Elle! Love, Cindy