About Me

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Bakersfield, CA, United States
Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.

Sunday, July 13, 2008

Home again

Sorry - for a bit of a delayed post, but we actually got sprung free on Friday Night. We were very pleasantly surprised on Friday when Hans came back with an ANC of 380 (up from 60) and they said he could go! All we had to do was get platelets and red blood cells (5 hours of transfusions) thank you to the donors out there who make these life-saving transfusions possible! So, our week in the hospital, dubbed "art camp" by Dr. Russell, finally ended! The kids were doing as many at projects as we provided them. Hans was actually doing pretty well but just had that cough and had to be on isolation for the RSV. Kevin was again able to stay at the hospital every other night and go into work from there. That just meant that Elle and I would have to be back down at the hospital by about 7 - to give him time to get to his meetings, we felt like the nurses - leaving at 7, back by 7, we really appreciated just how rough that shift is - esp. if you have a commute!

Hans has been doing great since he has been home. He has been a hungry little lion cub. We are once again going to great lengths to keep him satisfied. Yesterday he had it in mind that he was going to have a steak. He started bugging Kevin to take him to HEB and get him a steak by 6:45 am- they actually went up and Kevin had one on the grill by 9 am!?! After that he was pretty much a carnivore, with a kids meal/chicken nuggets from both Jack in the Box and 'Hot Donalds' and then for dinner a full grilled chicken breast. I tried to add in some carbs, and fruits, but I think he was more or less on the Atkins diet yesterday.

It was sweet to me that Elle stuck with us through our week inpatient. Since she didn't have school or camp to get to, she could just stay with me. It was nice - I taught her to play Speed and Solitaire between art projects. She's going to be going on a big adventure - she's heading up to Washington State to get out of Chemo duty for rounds 4 and 5. She'll be gone a full month, staying with Grandma Kathy/Grandpa Dale first, then taking a a golf camp with Grandpa Dean/Grandma Diana, then she's heading over to Seattle b/w the 27th- thru Aug 15th! We're gonna miss her, but typically, Elle and Hans and I would travel back home for a few weeks in late July/early August. We were going to try to actually join her up there for about a week b/w rounds 4 and 5, but now - after this surprise week inpatient - we're not sure if we should get the tickets or not!!! we'll keep you posted.

Yesterday Elle and I attended Ryan Williams service. It was both painful and beautiful. After the service, his casket was loaded onto a Dayton Fire Truck and then taken to the gravesite.

I'll update more in a couple of days - thanks, again, for checking up on us. We go into the clinic on Monday for counts.
Lara
PS - thanks to the girls for helping out with Honey and to Therese and Ginger for tasty meals that we were able to bring back up to the 9th floor.

6 comments:

Anonymous said...

Glad to hear Hans is getting better and that you are all home. Sound like Elle is going to have a fun month. It would be SUPER SUPER SUPER great if you and Hans get to come for a visit to Seattle! That would be SUPER, ok one more....SUPER....! Looking forward to hearing that you might be able to get tickets. I have vacation at the end of July so that would even be more SUPER....if it all worked out perfect, but I am sure if its was to happen you would be SUPER busy! Have a SUPER day..
Kerry and Madison!

Anonymous said...

Glad to hear Hans is getting better and that you are all home. Sound like Elle is going to have a fun month. It would be SUPER SUPER SUPER great if you and Hans get to come for a visit to Seattle! That would be SUPER, ok one more....SUPER....! Looking forward to hearing that you might be able to get tickets. I have vacation at the end of July so that would even be more SUPER....if it all worked out perfect, but I am sure if its was to happen you would be SUPER busy! Have a SUPER day..
Kerry and Madison!

Anonymous said...

Hi Hans,

You are such a strong little man. Please keep it up for your mom and dad and Elle. You're our hero!

Emma, Patrick, Gracie, and Johnny Tierney (Chaska, MN)

Anonymous said...

Hi! Glad to hear you are home. And so glad to hear Hans is doing better, he sure is a handsome guy! It will be fun to see Elle, I hear she is quite the golfer, look-out Grandpas!!! I'm praying chemo goes well for Hans. I'm so sorry to hear of the loss of your friend Ryan, I will be remembering his family in my prayers. Love to all, Cindy

Joe said...

Happy Birthday Hans.
Love cousin Joe

Anonymous said...

glad you guys are free and back home.

Rob is coming to Houston and will get in touch to drop by for a visit

you are all in our thoughts all the time.

have a great day

Liz