Hi Again,
We went down to clinic today for counts. Hans' HGB is a bit low at 8.9, but not enough to transfuse. His Platelets, Calcium and Chemistries were all okay in normal range. The plan now is to go back in for counts and an office visit on Thursday, and then we'll most likely get all set up to start the third round of Topo/Cytox/Zometa on an outpatient basis from the Clinic Monday thru Thursday next week. We got to see our little buddy Ryan today. He looks pretty good - but a little worn out with a cold. We're keeping the little dude in our prayers. Hopefully Elle will be able to visit with Ryan's big sister Hayley at the clinic one day next week!
Today I was trying to ask Dr. Russell about a thousand questions in the hallway. She reminded me that we don't know the status of his bone marrow at this point. I guess I'll try not to get too far ahead of myself.
Hans is doing very well! We spent a lot of this weekend celebrating and doing things that we can do and that Hans was up for! We had a swimming playdate, we went to the Kemah Boardwalk for dinner and rides, and we had a very sweet little fishing party with our neighbors. The kids all caught fish! Elle has been busy so far. Last week I needed playdates for her while we were doing scans, and our friend Laurie suggested that she join Genna for the 'Vacation Bible School' she was taking. That worked out and Laurie and Michelle helped with her in the afternoons and Michelle and Carmen helped with Honey. This week Elle is doing a Girl Scout 'Twilight Camp' every evening, and today she had a day-long playdate with her friend Kae, in the event that we needed blood or platelets and wouldn't make it back in time for camp.
Thanks to everyone for the help! Honey is doing pretty well. She has joined me on a couple 3 mile walks now.
All we can say is thanks for the well wishes and prayers. We're still on cloud nine with the news we've received. Right now we're praying that this treatment will continue to keep the NB at bay, and that our other dear friends Ryan, Erin, Colby, and so many others battling relapsed NB, will get news they are hoping and praying for.
I do have pictures to post, but I'm having technical difficulties - so I'll give an IOU on the photos...
Thanks for checking up on us. We're doing great right now!
Love, Lara
About Me
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.
3 comments:
Hooray for joyous, fun times! I will have to share with Grandpa Bud that the fish are on!
Love,
Grandma Kathy & Grandpa Dale
That's awesome that things are going so well. It's what we're all praying for! Is Elle still in the works for a Seattle visit this summer? Greta is getting anxious to see her. We love you guys!
Shelley and family
So excited for the great counts! You guys are constantly in our prayers. Lara--you are such a positive and faithful person. What a blessing you are to your sweet family!
Love,
Bernie
www.caringbridge.org/visit/lukehaberman
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