We met with Dr. Goldstein, the Kidney Doctor this week, and he seemed to think that Hans' kidneys are actually fine, that it was just a bad GFR (Kidney Function) test. He said that a lot of other numbers looked good that shouldn't be looking good with poor kidney function. It was a very pleasant surprise to hear that. It'll take a couple of weeks to know for sure. The doctor ordered one lab that takes a couple of weeks to come back. Basically if that one's good, we'll redo the GFR test. If we have good results this time around we'll assume everything's okay.
But, for now, they have Hans starting oral Etoposide. The course is 21 days on/ 7 days off. He took his first dose this morning and he didn't like it at all. So, hopefully by round two we'll have some answers about the kidney function. If it's okay - they'll switch him back over to Accutane for 6 months of maintenance.
We got Elle back and it sure is loud around here again. We have all been having fun with my mom! Hans hit the milestone yesterday of Day + 100 since he got his stem cells. This is the magic day where kids are pretty much all healed up and back to a more normal life after the harrowing stem cell transplant. It's funny - I wasn't really paying attention to that, but Kevin and I noticed about last Friday that Hans was suddenly doing really really well! We celebrated yesterday by making cupcakes and taking another trip to Chuck E. Cheese.
Lara
About Me
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.
4 comments:
So thrilled to hear that Hans is NED and that his kidneys are looking good!!!!! God answers prayers!Can't wait to see him running around the park or at the pool soon. Welcome home Elle!
The Nolens
Hopefully it's just a bad GFR. Mine has been acting up too lately and the doc explained all the other tests were fine and so they aren't worried about it...who knows. Glad everyone is doing so well!
Kelly
Gooood news! So glad to hear Hans is doing so well. I can't believe you're saying sweet, quiet, shy Elle is noisy...hahaha. Great to hear you're all having fun. Love and prayers.
Aunt Holly & Uncle Michael
Oh completely fabulous news all the way around. Please tell Hans his cousin Erin is very envious of all his trips to Chuck E. Cheese and that when we next meet, we'll have to have some pizza together.
xoxo
E
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