We went into the clinic for a quick counts check today.
Hans did great! They've had great volunteers at the clinic with fun art projects all summer, so Elle really doesn't mind going. Hans has finally started to participate in some of the activities. They just did a finger stick for a complete blood count and Hans' counts were fabulous - his Hemoglobin was through the roof at 13.6. His ANC (part of his white count that we always pay attention to) was 3 thousand, and platelets were great at 245. Kevin and I were getting nervous. Hans has been on Etoposide for a week now. It's a little freaky to be directly responsible for giving him oral chemo. He's supposed to get it on an empty stomach, so we've been waking him up at 6 am and sort of ambushing him. At least we get it over with quickly that way. It does seem to be affecting his appetite some - he's not quite the little lumberjack he had been.
He had an episode on Tuesday where he wasn't energetic and was much fussier than usual. I tested his glucose and it was great. Maybe he just didn't want Gramma to leave. We took her to the airport on Tuesday. It was a fun visit. She helped me with a few little things around the house, we took the kids swimming a couple times, and we 'did lunch' a bunch!
We'll keep you posted on things around here. Hans is going in for counts weekly now, and his next office visit is in two weeks. Elle starts school on the 27th! We just signed her up for Fall Soccer and she's contemplating doing a kids Triathlon this Saturday. We'll let you know how that goes!
Lara
About Me
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.
4 comments:
Every day, without fail, we check onto the blogspot to see "what is new" at your house. What good news about Hans's latest blood counts! We were so proud of Elle when she had her hair cut for a good cause. We love you all, and keep you all in our prayers, constantly.
Aunt Irma and Uncle Reino
Sounds like things are going good...awesome job!
Elle - good luck in the triathalon!
I'm just thrilled to hear this good news about our dear little Hans! And it is great to be able to picture your whole family together, at home, having a life for a change! Let's hope this is the new "normal". What great parents you and Kevin are, through all the soul-grinding decisions, weeks in the hospital, and torments of watching your child in a life-threatening situation. You two have been (and are) nothing short of magnificent. Love to all of you,
Kim
Hi Guys-
We are so glad to hear the good news about Hans kidneys!!!! Yea for Hans! Hope you guys enjoy the rest of the summer!
Claire, Shaine & Patrick
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