Okay - we are home. I'm exhausted and have to be at a swim meet at 6:30 am, or I'd fill you in more. Hans woke up at 630am on Weds, but didn't wake up. Elle saved him by pointing out to us that "Hans is sleeping with his eyes open." Called 911, gave emergency injection of SoluCortef (50mg of hydrocortizone) since he doesn't make it on his own now w/o adrenal glands. Did not respond. Remained unresponsive for the entire ambulance ride to TCH in rush hour AM traffic. Around 830 am they rechecked blood sugar in TCH ER. He was at 15. Normal range is 80-120. They injected sugars, a nurse asked how he was and he responded "I OKAY". He had been in a hypoglycemic coma for 2 hours. Unclear why - some kids with Neuroblastoma have issues. New plan is monitor Blood Sugar levels from home 2x/day, and up the dose of each steroid he's receiving. Hans is now the same as he was Tuesday (fine). We go back in on Tuesday, and then again the next week.
Thank you's: Ginger Klein and family for taking Elle all day Thursday and Thursday night. Dana and family, Carmen and family, for helping Ginger entertain her Thursday.
Sweebe Family for taking care of her today - getting her to swim practice, getting her enrolled in museum day camp and taking her swimming! Thanks to everyone else for your thoughts, prayers, calls and concern.
We do not have access to our telephone due to the lightning. So - got to call us on cell phones or use snail mail for now. Well, I think email does work - with pirated wireless. Sorry, neighbors!
Malachi and his family were really neat, upbeat people. Their absence from the 9th floor is haunting. His web page is: http://www.carepages.com/ care page name: buddhabelly You just have to register with an email address, login name and password.
Now we still have two kids fighting for their lives in the ICU. Serenity Colon continues her fight. They are doing a lot for her. www.caringbridge.com/visit/reniroo
We ran into yet another Neuroblastoma mom outside the lobby of the ICU. Jaki is having complications after his 20 hour resection surgery! Our post-surgery experience traumatized us! But Hansie got through it and we made it home. Prayers, thoughts, good vibes, anything you can spare would be great. It's days like these I feel we are really in the trenches, in a tour of duty.
Lara
About Me
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.
4 comments:
Prayers, thoughts, good vibes, you've got 'em all from us. Just wish we were closer so we could share some of the burden and help prop you all up. We are with you in our hearts!
Love, Kim & Daniella
Good morning!
It's great to know Hans hasn't sufffered any setbacks due to his low blood sugars.
May you have a restful weekend...I will be waiting to hear about the swim meet!
Love and hugs,
Aunt Susy, John, Leo the Lion, and Buzzy
Dearest Weberlings -
We have been updated on Han's progress thru the site, phone calls, etc - anything we can get our hands on. Please call us ANYTIME for anything you may need (entertaining Elle, yard work, etc.).
Its those times we rush to the ER that ARE really tough. When you're getting such the specialized treatments, to be knocked off course IS traumatizing. It reminds us HOW DARN HARD this fight really is.
Keep the faith, dear friends. You are all so strong - and so many people love you and are rooting for the best.
Love, the Virinas
Lara and Kevin - we're thinking of you daily with the photo of Hans on the fridge. Wish we could be there to help out - are supporting you from afar.
Love Jill and Clay
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