Hello,
We learned yesterday that Hans's stay in the hospital would end sooner than we had thought!
Once the Attending Physician on the Bone Marrow Unit reviewed Hans's chart yesterday, he decided he'd rather be safe than sorry regarding Hans's infected line. He gave our Oncologist the choice of pulling out his central line, or waiting til Hans had negative blood cultures after receiving a full course of antibiotics before putting him through BMT. She opted for the latter. We are home and are waiting for his IV antibiotics to come via courier. He'll be getting 6 doses a day - plus his steroids. I might as well go to nursing school! Ha. I'm really not cut out for nursing. The new plan is that we know by Tuesday if his cultures stay negative, and then we can go ahead with transplant next Thursday, the 12th! What a roller coaster we are riding!
Hans also had a bone scan today - our doctor just wanted to be sure he was starting with a clean slate for the BMT. I pray that the results come back normal. We should know in a day or two...
Needless to say - if there is a postive result on the blood cultures, or if there is something on the Bone Scan the Plan will change. I generally do better when we're working on a well-established plan - so all these changes take their toll. But the bottom line is that Hans is handling everything beautifully. Every single one of the kids we have met going through this experience is pretty amazing!
On the bright side, we're home for Easter! Hans will only be that much stronger before we do go into Bone Marrow. And, Hans' little buddy, Patrick, is going into Bone Marrow Transplant on that same day. It'll be quite an experience - amazing to be going through it with a friend.
On the down side... my poor mom just checked into a hotel with Elle! She just started antibiotics for bronchitis and Elle was showing symptoms of a cold. They're just playing it safe, but I feel for them. Hopefully they'll only be away a night or two...
That's "all" for now...
Lara
About Me
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.
2 comments:
Lara,
You are amazingly strong and an inspiration to moms everywhere. We will pray that Hans stays well and that he can have the BMT on the 12th. Don't forget to take care of yourself, too!
Bernie
Hi! Nice to hear you will be home for Easter. Hans will be that much stronger for BMT, that is a good thing. We are so amazed by your strength ,Lara, You and Kevin are wonderful parents, Hans and Elle are an example of how wonderful you are. We will continue to pray for all of you. Love, Cindy
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