An NB article on a new clinical trial of NB was going around. It contained the following quote:
"Neuroblastoma, a solid tumour found outside the brain in the nervous system, is the most frequent cause of disease-related death in children." http://www.eurekalert.org/pub_releases/2010-08/w-sfn081810.php
I am floored. How can we be almost 4 years into this cancer fight and have never never known this? I am almost doubting the validity of the quote! How can Neuroblastoma be the biggest disease killer of our kids and most people have ever heard of it???
What can we do about it - - many many things! There are wonderful foundations popping up all over the country. But one thing you can do right now if you live in Houston is sign up for the NB HOPE 5K Fun Run/Walk. You can run it, walk it, or just buy some raffle tickets.
We've got some very cool prizes - 2 round trip airline tickets on Air Tran, 2 tickets to Disneyland, and a photography session. Please contact me at kevinandlara@hotmail.com. To buy some raffle tickets ($5 each, or 5 for $20). 100% of raffle ticket proceeds go to beat NB through the Children's Neuroblastoma Cancer Foundation.
Thanks for your support...
Lara
About Me
- Hans Weberling
- Bakersfield, CA, United States
- Hans was a busy, happy, sweet and fearless three year old when he was diagnosed with Neuroblastoma. He fought his disease like a "gladiator" for nearly 6 years. Hans was an animal lover to his core. He was 'guarded' at home by his three cats, Black, Orange and Cotton. He also had his Golden Retriever, Honey, to keep him company. Hans enjoyed swimming, biking, gardening, grilling (he had his very own grill!), horseback riding, playing video games, building Legos, and flipping between Nickelodeon, Cartoon Network and Animal Planet. Hans loved all members of his family and he was a loyal friend. He had to go through a lot of treatment in his life. But Hans powered through it. His attitude was let's get this done! His motivation was always to get back home, to his family, pets, favorite foods and pool.
2 comments:
It just shows that anybody can write anything. But you and Hans, Elle and Kevin prove that! Count me in for 5 tickets and I will give the $ to Grandma Stephanie. My thought and prayers are with you.
Pat K.
Sad but true, it is. Kids' cancers are so small in patient population that they don't rank, and aren't recognized, next to adult cancers. I thought the same thing when I found that "little" fact out.
You keep fighting the fight. There is hope and we are working hard to raise funds and awareness out here in San Diego. Private fundraising is about all we have in the NB world.
Melissa Mikulak
www.MaxsRingOfFire.org
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